so i just realized i never post on here anymore. theres just way to much going on in our lives to keep track of everything. I usually never have any time to actually sit at my laptop and do this and i couldn't remember my username/password to do it from my phone.
Kailey is doing well. She is 14lbs and 25". She is now sitting by herself for short periods of time. Her arms are not very strong so she can't hold herself up long enough to crawl but we are working on it. She is still on oxygen but her baseline is now 1/8 of a liter and we are still weaning as tolerated. The swelling in her airway has gone down quite a bit, now ENT is focusing on getting rid of scar tissue that is sitting right above her trach and blocking most of her airway. They keep trying to get it out when she has her scopes but she is still to little for them to get it.
Her 1st birthday is coming up. we can't have a party for her due to flu season, so we will just have a cake and presents at home just the 3 of us. I can't believe it, she's going to be 1. where has the time gone? she definitaly doesn't look to be a year old, people are usually amazed when they first see her. "the little newborn is holding herself up very well" is usually the reaction we get lol. yes she's little, but she doesn't let it get her down. Daddy and I decided that she's not allowed to have excuses anymore. She has to continue to be strong and not use her trach or being premature as an excuse not to do things.
This winter has been a little tough on us, Kailey loves being outside and going places but since its flu season we stay in as much as possible. She gets so excited when we go to the doctor because she actually gets to go somewhere. Usually if we have to go to the doctor we plan all of our errands for that day. so we won't have to get her back out of the house.
I had our meeting with first steps (program for free therapy for premature infants that need it) the other day and I was asked "who is your support system"...as in who i leave Kailey with. HA! my baby goes to no one and wont for a long long time. I don't like other people suctioning her, or touching around her trach at all for any reason. She doesn't eat well for anyone except me. no one else has trained themselves to her sounds. I wake up at night every time she needs suctioned. I wake up when i hear her oxygen tube hit the floor. I wake up when i hear the way her secretions make her sound when she laughs or crys. I wake up way before her monitor beeps when something is wrong. She needs ME at all times. I may be tired all the time, but i've gotten use to only having a couple hours of sleep at night then staying up all day. Its our life now and i wouldn't change it for anything.
ExhaustedMTB from WTE~ thank you so much for sending Kailey birthday money! you are so sweet! she is going to the doctor on the 15th and this when i will be taking her birthday shopping! (and maybe to get her ears pierced havent decided if i'm brave enough yet) Hopefully i'll remember to get back on here and post pictures from her birthday!
In other news...I have decided we could handle another kid. So we are going to start TTC again! Hopefully it won't take 7 years this time! Happy HEALTHY Magic Baby dust to me!
My instagram name has changed.. it is now Krisjustic
Kailey's birth - 23 weeks and 3 days
Kailey's due date was May 21st 2012. On January 23rd she decided she didn't want to wait so long before she met mommy and daddy. I awoke at 4:00am to my water breaking. Terrified, I woke my husband up and he rushed me to the nearest hospital. After being examined by nurses and having an ultrasound done they sent my doctor in to talk to me. She informed me that at 23 weeks the baby would not be viable. Then I was moved to a room to prepare to deliver my child. An hour had passed and my doctor came to check on me and realized I had not progressed any with my labor. She left the room and when she returned she said she was sending me to a hospital with a better NICU and high risk doctors. Two hours later I arrived at the Childrens Hospital, the doctors checked me and thought i was going to deliver at any moment. Kailey had her butt and part of her legs sticking out of the cervix (she was bent like she was touching her toes). They started me on magnesium to try to stop my contractions, It worked (mostly). Throughout the next couple days when they checked her position they were amazed to find out she had one leg through the cervix, then the next time when they checked she had climbed back in half way. My little girl couldn't figure out if she wanted to stay in or come out. On January 26th the doctors stopped the magnesium due to me being infected. (I had received two steroid shots to help her lungs develop, without the shots there wasnt much of a chance for her.) It was time for Kailey to make her grand appearance. At 2:30pm I told my wonderful nurse that I felt like I needed to push, she ran to get all of the doctors (we had 5 doctors/assistants in the room just for me, and at least 5 more for the baby). Kailey was born at 2:38pm weighing 1 pound 1.8 ounces and 11 inches long. My husband and I got moved to a recovery room where we had to wait 5 hours before we were able to see our daughter. When we first saw kailey laying in the incubator we didn't know what to think. She was so tiny. Her eyes were fused shut. She had no fat on her body. She had tubes and wires everywhere. The doctors came and told us that she was stable and we just had to wait and see. Our nurse convinced us to put our hands inside her bed and let her know we were there. My husband went first, he put his finger at her hand and she quickly wrapped her hand around it and would not let go. That was the first time I realized just how strong she was.
kailey birth
No comments:
Post a Comment