3-30-12

Today was a good day. I finished Kaileys Easter dress and took it to the hospital, my all time favorite nurse took the dress and showed others Kaileys pretty Easter dress lol. We have gotten Kailey out of her bed for the last three days to kangaroo, she loves it. She also got a new neobar today, it's a little bit bigger since the old one fell off four times in one week. I cant believe how chubby she is getting, she is weighing in at 3lbs 2ozs but they are saying she hasn't grew in length in about 3 weeks. I'm pretty sure someones measurements are off since she's to long to fit in my bra nowadays....well its been a few days since i started on this post so...Now we are just waiting for this months doctor to see if he going to have the same plan as the last one (I hope so) tonight is kaileys bath night which means we will be at the hospital late, (UK hospital) and tonight is UK's big game which means its going to be crazy here. Saturday night people set cars and couches on fire here b/c UK won, kids were running and screaming up and down the street. Cops, fire trucks and ambulances everywhere, I'm terrified for tonight. Wish me luck people!

The plan

Talked to the doctor, we have stopped the steroids. Kailey will stay on the ventilator while she grows, she is at 1280 grams and needs to be 1500 grams before we try to take her off the ventilator again. Her tiny lungs just cant do it yet. Hopefully it doesnt take her long to gain the weight, and maybe just maybe she'll get to go home by june.

Rough night

Ever had one of those images that you wish you could get out of your head but just can't? Well watching my daughter be bagged for 3 mins while pale white with blue lips is at the top of my list! Her heart rate was in the 40's and her SATS was at 1. I had to leave the room so I'm not sure how long they actually had to bag her. The steroids didn't "fix" her. She stayed off the ventilator 16ish hours before she had to get the ET tube put back in. Now she's laying there happy as a clam as we wait for the doctor to figure out what our next step is. She only weighs 2lb 14oz so she's to small for a trach but today she is 2 months old, isn't that to long on a ventilator? Is this going to cause major side effects if she has to stay on the ventilator to grow? Can we try the CPAP first instead of the nasal cannula before even thinking about a trach? So many questions, no doctors in sight *sigh*

1st day of steroids

Today Kailey got her first dose of steroids. She didn't have any of the short term side effects, yet (I've been watching her heart rate and blood pressure all day). She also had her very first eye exam! They said everything looked good, just premature. One of our most favorite nurses has somehow made it so she will be the one taking care of Kailey on Monday, (extubation day) since Kailey's primary doesn't work that day. Now if we can just get our favorite nightshift nurse to work Monday everything will be alright... I'm being picky about the nurses we have on extubation day b/c some nurses won't try to fix the problem or make her comfortable. They just turn her o2's up or get the doctor to reintubate her. Everyone say a prayer for my sweet Kailey to help get her off the ventilator.

Eventful day

The day started off with us worried about kaileys neighbor coming off the vent. Everything went wrong when we were about to start kaileys care. Her nurse flipped her over and the neobar came right off her cheek. Kailey drools a lot and when that tape gets wet it comes off. At first we thought the tube was still in, her heart rate was good and her sats were good. Then the dinging started, her heart rate dropped very low, the nurse had to be rough with her to get it to come back up. Her tube was out. The doctor had came in to talk to us during this and didn't realize what was happening at first. After I told her and the nurse asked for a new neobar she jumped into action. She decided we would try kailey on the ram cannula again just to see how she does. Kailey fought her nurse with everything she had, she wore herself out. During the 3 hours she was on the ram cannula the nurse had to get rough with her to bring her heart rate up numerous times. So Kailey is back on the ventilator and our plan for starting steroids Friday and taking the tube out Monday is back on.

Not the plan

Kailey had some visitors today. Our friends came to see her and she loved it. She kept playing peek a boo and wiggling around showing them how strong she is. We went to get lunch after they visited Kailey for a little while, then decided to head back to the ronald mcdonald house to do some laundry and try to relax a little bit. Our plan was to do Kailey's 8 o'clock care and see how much she weighed and spend most of the night with her. BUT the universe had different plans. A woman that has been on bedrest for quite some time delivered her quads tonight. This shut the whole NICU down. My husband and I have some awesome nurses, so we knew that the quads would be coming along any day. Anyhow, the clerk told us that we have two of the quads in our nursery. That means we won't be able to go see Kailey tonight and we wont be able to get in for her 4 o'clock care for the next few weeks.I'm so scared they are going to rearrange everyone in the NICU and move Kailey to a different room without her neighbor (we have grown very fond of her and her parents, nursery 1 was our little family) I am very worried about the quads and the mother, i'm anxious to get to the hospital to make sure they are okay. They have been in my prayers since we found out about the momma being put on bedrest, and they will continue to be until the day they all go home (which i'm sure will be before Kailey)

3-19-12

So, the weekend doctors are gone and our lovely regular doctor is here again. Kailey is keeping her tube for now. Friday is going to start steroids and Monday her tube will be history. Pray that these steroids don't give her any of the side effects. Kailey's cute little neighbor is saying goodbye to her tube today or tomorrow (depending if they have everything they need today) please keep her in your thoughts and prayers.

OMG

So last week kailey got to try breathing with a nasal cannula instead of the ventilator. She made it 5 hours before the she had to be intubated again. Then we found out about the pneumonia, so she started antibiotics. Today is day 6 of antibiotics and they are talking about trying to take her off the ventilator again tomorrow, with no steroids. (she still has the pneumonia btw) i would love for her not to need the steroids, but one doctor says her xray looks a little worse then before. Which has me wondering why they would attempt this. They are also going to try to take her neighbor off the ventilator as well. There is only one other baby in our nursery, and we share a nurse. Which makes it a little hard when they both need attended to at the same time. Everyone pray that Kailey and her sweet little neighbor do well tomorrow.

7 weeks today..3-15-12

Today Kailey is 7 weeks old, and she weigh 2lbs 6oz. That's a big jump from when she was first born, she looks completely different. Today is day 3 of antibiotics, trying to get rid of her lung infection (ureaplasma pneumonia). I finished her tiny Saint Patrick's Day dress last night, and she is going to look so cute!

3-14-12

Kailey slept most of the day. Her daddy and I got to take her temp and change her diaper at 4 o'clock AND at 8 o'clock (which never happens). She weighed 1070grams tonight! She is gaining weight so well, it's not going to take her long to catch up to the other babies.

Happy St. Patty's Day!

                                                              Mommy made me a dress!

So to celebrate Kailey's first St. Patrick's Day I made her a pretty little dress, (a girl, even this small must accessorize) so we got her a little hat and a tiny pair of sunglasses. Cute huh?  I love to bake, so I made some green and white cupcakes for the nursing staff so they could celebrate too.